Our Angel

Chase Maddox
Thursday, September 22, 2011
The yellow scrubs.
As gastrointestinal virus was an ok explanation for all of this for the first 24 hours, but as day 5 was approaching with worsening symptoms I knew it was something far worse. In the PICCU, we were in a glass room with Chase and the doctors and nurses were constantly coming to his bedside. Before they entered the glass door, they had to suit up in yellow scrubs due to the contact isolation Chase was under. I completely understand their intent of not transferring germs, but I knew what Chase had was not contagious. No one in our family had been sick and I had been by his side every second and I hadn't caught this GI virus. I remember watching them suit up and wondering why they still thought he had a virus and why they were not telling us anything else that it could possibly be. Stool cultures, urine cultures and blood cultures were all coming back negative. I learned later that day that part of the confusion was the manner in which we were transferred. Chase's PCP had transferred him as a stable patient with a GI virus. He listed that Chase was admitted for dehydration and that he was being transferred with corrected dehydration. Basically saying he was only transferring us because we requested it and not because Chase needed further medical care. The rest of this day is quite a blur, by this time I had been up for going on 72 hours. Chase's cough worsened and the tremors continued. After 14 hours of no urine in his cath, we finally seen a drop. They were collecting the black water he was passing to do additional stool tests. His MRI showed a tiny lesion in his brain which was probably caused by the amounts of sodium he was receiving. He had a hard time keeping the oxygen level in his blood normal and all night long he had bouts of tachycardia. The next morning his nurse came in and forgot her yellow suit. She realized it just as she approached Chase's bedside, but said "oh well, he doesn't have anything contagious or we would all be sick by now as bad as he is". I decided to pick her brain a bit on what she thought was wrong and she told me Cystic Fibrosis. As soon as she left Ryan and I started searching the Internet about CF. It was the first thing we had heard besides a GI virus and we wanted to learn more about it.
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