A change in doctors

The central line was wonderful and all day Saturday he slept well.  They altered his TPN every 8 hours to make sure he was getting what he needed.  Sunday morning he woke up and looked at us for the first time in 8 days like he knew who we were.  Early Monday morning a mass began to form around the base of the central line.  It had already failed for blood draws overnight, but the fluids were still running.  They stopped the fluids and had to xray the line.  After about 8 hours they were finally able to reconnect the fluids.  Chase wasn't getting any better and this time without fluids set him back again.  We were questioning everyone about his condition and a diagnosis.  We had had a change in doctors and it just seemed they were not doing anything to find out what was making him so sick.  A GI virus remained the diagnosis despite the other symptoms he was having.  By this time he had lost about 20 % of his body weight and was still too weak to even open his eyes.  His bloodwork was improving as a direct result of the TPN, but he was lifeless.  We talked to the doctors about CF since it had been mentioned to us.  They told us since he passed his newborn screen CF would be ruled out.  They moved us out of the PICCU and decided he could begin nursing again.  He was so weak he could barely latch, but I tried my best to keep him awake.  The new doctor we had was far from the one we had upon admission.  She was not easy to talk to and every question we asked she had a quick response to.  She was adamant that Chase had a virus and was unwilling to check into anything else.  On Thursday, I was told we were going to be discharged.  They unhooked his TPN, pulled his central line and sent us home.  I did ask for one more set of labs before we left, but she said it was not needed.  I was so excited at the thought of going home...I just wanted all of this to be over and I missed my little Aubrianna so much that words could not describe it.  I tried to tell myself that everything was ok, but I knew Chase was still so sick.  We got home at around 8 pm on Thursday.  I honestly sat up all night watching his condition deteriorate.  As soon as his PCP's office was open on Friday, I took him in.  I will never forget the look on the doctor's face as she walked into the room.  She sent us immediately back to the local hospital for blood draws and told me to go home and repack our bags while she waited on the stat results.  It was scary...his sodium was back to 123 and his potassium at 6.8.

Waiting on the xray results to check the status of his line.