We began the 1 hour drive back to the Children's Hospital. Chase could barely hold his eyes open and he seemed to be having trouble breathing. Our PCP was trying to arrange a direct readmission for us, but things were not working out, as she was dealing with the same doctor who had discharged us just hours before. As we sat in the lobby waiting on the readmission, we were in constant contact with our PCP. She was concerned that we were running out of time on getting the fluids reconnected and told us just to get up and take him to the emergency department. The next few days were absolutely horrible for Chase. He endured hundreds of painful sticks including arterial sticks and an EJ line. He was choking on the oral sodium and still having bloody diarrhea, coughing, runs of tachycardia and barely keeping his eyes open.
This was so sad and so frustrating as a mother because he had just had a perfectly good central line pulled before we were sent home. The doctor was so unconcerned with what he was having to go through. He was miserable and still not getting much better. After 3 days of misery, he woke up and decided he wanted to nurse. This was on Sunday morning at 7 am. This was the first time he initiated nursing in about 2 weeks. Two hours later he wanted to nurse again and this trend continued throughout the day. They told us he now had post gastro enteropathy, basically saying he was over the virus and still having the symptoms because his intestines were damaged. We were discharged again after 5 days, but I did feel better about leaving this time since he was at least eating.
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