Our Angel

Our Angel
Chase Maddox

Friday, November 4, 2011

Chase's blood pressure has continued to stay elevated, but he has responded well to his medication and
they moved forward with scheduling his colonoscopy for yesterday.  It was a rough day for him.  His bowel prep left him dehydrated and the anesthesiologist had a hard time getting his IV started.  They blew several veins and ended up doing an arterial stick for his bloodwork.  We were able to stay with him until he was asleep, but it was hard to watch.  An hour and a half after they began, the doctor told us she found lymphonodular hyperplasia lining his colon.  She said they didn't really know the cause of it, but she believes it is the source of his blood loss.  She did do biopsies, but we will not get the results until next Friday.   The good news is she did not see any more ulcers!  He did have some difficulties with his anesthesia and a lot of bleeding after the procedure, but he seems to be doing better today.  She told us to keep him on Miralax until we see her again next week.  She is planning an inpatient stay for him in a couple of weeks to calculate all of his caloric ins and outs.  Chase has always been on the small side (below 0% on his growth charts), but he has been unable to gain weight and grow properly over the last several months and this would help narrow down the reasons why.

The EEG he had done last week came back normal.  What a wonderful blessing!  He has an appt to see the neurologist next Wednesday.  With therapy on Tuesday and Thursday and appts on Wednesday and Friday, Monday will be his only day off next week.  He sure is a hard little worker! 

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