The biopsies from last weeks colonoscopy came back on Monday of this week. His doctor called and told us they revealed he has severe eosinophilic colitis (EC). She presented his condition to the other doctors on Monday morning and they agreed that an upper endoscopy was necessary to check for the lymphonodular hyperplasia there too. There is no cure for the colitis and the only treatment is rounds of steroids that would hopefully put it in remission. Steroids are scary, especially since we do not have an answer for the hypertension and other issues. I pray there is another treatment plan they come up with. I have asked they hold off on the steroids until they do the endoscopy. In the meantime, we can hopefully find out why he has developed this disease and treat the underlying cause. EC has two forms, a primary form and a secondary form. They believe he has the primary form and that it is stemming from allergies, so we are going Monday to see the allergist for testing. The secondary form is caused by and underlying condition (potentially an autoimmune response) and by treating the condition, we could clear up the EC. I do not know if this is linked to PHA, but I do know PHA has caused damage to the lining of his colon. I believe this damage could have lead to the development of EC, but no cases of this are written in literature and the doctors have decided the two conditions are not linked. The upper endoscopy is scheduled for November 21st. We should have a better understanding then.
Chase's visit with neurology this week was a great one! They do not think he is having seizures! They did diagnose him with benign paroxysmal positional vertigo, but we were so happy to rule out a more serious neurological condition. God is so good and we are so thankful for this blessing! The vertigo does help explain his dizziness, falling, visual disturbances and headaches. They are going to do another MRI just to confirm their diagnosis, but feel certain it will be normal. There is a medicine to treat this, but we want to hold off on it for now as we feel he is taking enough and there are always side effects to deal with. We are trying to get the endoscopy and MRI scheduled on the same day to minimize the times he is under anesthesia. It felt so amazing on the drive home to have heard such good news! It was almost sunset and the sky was absolutely beautiful. It seems that God shows us these beautiful images as a way of encouragement and to give us a glimpse of how beautiful Heaven will be!
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