Our Angel Chase

Finding time to post updates is a little tough with two kiddos, a hubby with two jobs and all the many things that fill our days, but I just wanted to make a quick post as things have been a bit rough lately for Chase.

He has had good days in between, but for the most part he has been sick since Thanksgiving. A series of viral illnesses, RSV and a stomach virus have been hard on him. He is now almost back to the weight he was a year ago. He was hospitalized last week for a stomach virus. He received IV fluids to help correct his electrolytes and was discharged on day 5 of the virus. He continued to have vomiting and diarrhea after we got home, up to 18 stools per day. We done our best to keep him hydrated, but on Sunday he started passing solid pasty stuff in his urine. He went in for a urine culture and stool cultures. His urine is just highly concentrated from the dehydration so we have been pushing even more fluids. We learned last night that one of the cultures came back positive for a C. diff infection in his intestines. His GI doc and PCP believe it is just a testament as to how bad his colon and intestines are, as he does not fit the normal criteria to have this infection. They believe the severity of his eosinophilc colitis and having the virus on top of it lead to the infection.

His immune system is lacking the ability to fight things off right now, but we hope he will soon become stronger. He began a 10 day treatment for the C. diff today. His first dose made him sick, but the pharmacy was so sweet to mix up another compound for us to try and he had no trouble taking it. Because of all of his acute illnesses lately, he has yet to take the high doses of steroids for his EC. The plan was to start them the last week of February, but the new infection will have to be treated first.

Through everything, he continues to smile constantly. Chase doesn't yet talk except for a few words, but he prays all day. He prays when he eats, when I change his diaper and just out of the blue. He doesn't speak...he just looks at us, puts his hands together and closes his eyes. He sits silent while we pray with him and after we pray, he claps his hands. His devotion to Jesus is a lesson for us all. I know he is the child and we are the parents, but this child has taught his parents more than we could ever teach him.