Our Angel

Our Angel
Chase Maddox

Friday, July 20, 2012

Update

Just wanted to post an update on Chase...the little stinker who is certainly in his terrible two's stage :).  He has been doing great and seems to be learning something new everyday.  We went to the beach in June and since we have been back he has been into everything and talking up a storm!  We are so thankful for his progress as the communication has made things a lot easier. 

He began taking a new medicine for his migraines in late May and the difference is astounding.  He has gone from having migraines daily to only one every couple of weeks or so.  He is sleeping better and seems to feel a lot better.

His EC (eosinophilic colitis), which has been in remission since February, has flared up again.  We don't think it is a terrible flare up since he isn't bleeding as bad as he used to, but it still breaks our heart that it is back.  The good thing is that he doesn't seem to be in any pain with it. 

The doctors had planned to do an admission next week for a sleep study and to cath him for a 24 hour urine collection.  This was for the testing of the pheo (tumor) they believed he had and to try and figure out why he didn't sleep well at night.  Thankfully, the medicine he is on for the migraines has helped him sleep better and caused the sick spells he was having to go away.  We were able to get all of this testing postponed and hopefully we will not have to reschedule :).

We are going to see his GI doc in a few weeks to talk about a plan for his EC.  They are going to schedule another sigmoidoscopy to get an idea of how his body is fighting it.  I pray that he has made progress and will not need any other intervention.